International Hyperhidrosis Society

Hyperhidrosis Community Spoke – It’s Time Now for Everyone Else to Listen

For too long, the voices of hyperhidrosis sufferers have been either silenced or dismissed. But thanks to the help and bravery of our  community here at the International Hyperhidrosis Society, we are changing that! 

We’ve just released our official report called The Voice of the Hyperhidrosis Sufferer  that’s going to help raise awareness and understanding of the true burden of hyperhidrosis. This report is a product of the first patient-focused meeting on hyperhidrosis, and it will help to influence decision-makers, clinicians, researchers and innovators for many years to come!

As you likely remember, in November 2017, the International Hyperhidrosis Society hosted a ground-breaking Patient-Focused Drug Development (PFDD) meeting on hyperhidrosis. Hyperhidrosis sufferers were the Experts at the PFDD, and courageously shared their journeys and struggles. Representatives from the FDA, the pharmaceutical industry, medical device makers and product innovators listened and learned about what it’s truly like to have hyperhidrosis, how the medical system often fails sufferers, and the types of treatment options that are desperately needed for the future.

The PFDD was a major moment in our hyperhidrosis history, and we are so grateful for the for support, honesty, commitment, compassion, and empowerment that has flowed from it. Indeed, the PFDD was just the start. Now, by hearing the voices in the resulting report -- the voices of the hyperhidrosis community -- we can navigate the road ahead and show the world what success looks like for us!

As you read the pages that follow, know that all personally-affected hyperhidrosis sufferers (we call them “experts” and “advocates”) were encouraged to contribute to the dialogue – whether they were seated on stage, in the audience, at home on their computers, or submitting their perspectives through our open comment period. Discussion focused on hyperhidrosis impacts, treatments, and research with an emphasis on constructive, forward-thinking conversation and information sharing.

The views expressed were personal; the stories shared were intimate. Members of our hyperhidrosis community participated with candor to teach. FDA regulators listened, and industry innovators learned. The meeting, the subsequent comments, the creation and dissemination of this report, the path that unfolds now ahead of us... each is part of the process to move us forward. 

The conversation continues and the voices generously shared in this report echo with strength and dignity. Hyperhidrosis sufferers’ words about their struggles must remain top of mind to guide us in building a better future.

Please review and SHARE the official International Hyperhidrosis Society Voice of the Hyperhidrosis Sufferer– print it, download it, tweet about it, email it, read it out loud on your YouTube channel, do a podcast about it, share it with your local school nurse, leave it on your coffee table so guests can see it, drop it off at your doctor’s office  – whatever it takes! (Of course, when being social, remember to tag us: Facebook @SweatingStopsHere and Twitter @WeKnowSweat.)

We must succeed so that all hyperhidrosis sufferers’ lights can shine brightly, without the burden of excessive sweating and all that goes with it. They—we—deserve that.

The International Hyperhidrosis Society is sincerely thankful for the generous support and trust of Dermira, RA Fischer, Brickell Biotech, Hidrex USA, and private donors for making our collective landmark initiative possible.

Pin It


Every Donation Helps! Please consider a year-end gift to IHhS. Together we're making the world better for excessive sweating sufferers.



Sign Up for Our News Blog

Page 1 of 4

  1. Get inside intel, research results, event invites!
  2. First Name*
    Please type your first name.
  3. Last Name
    Please type your last name.
  4. Email*
    Invalid email address.
  5. Year of Birth*
    Invalid Input
  1. Gender*
    Please indicate your gender.
  2. Tell us about you.*

    Please tell us who you are in the hyperhidrosis community.
  1. Country*
    Please select your country where you live.
  2. Postal or Zip Code*
    Invalid Input
  1. Where do you sweat excessively?*

    Please tell us where you sweat so we can help you and others.
  2. Fight SPAM*
    Invalid Input

Non-profit shout-outs

 logo exchange silver 128x94

International Hyperhidrosis Society has received the GuideStar Exchange Seal a leading symbol of transparency and accountability provided by GuideStar, the premier source of nonprofit information.




International Hyperhidrosis Society has been awarded as a Top-Rated NonProfit for seven years in a row! Read the reviews and add your own.



Hyperhidrosis Awareness Month is here!

Education and Research Partners