|
|
|
|
|
|
|
|
|
|
|
New Feature on SweatHelp.org: What's On Your Mind?
The IHHS is here to help people with excessive sweating attain a level of symptom management and care that allows them to concentrate on the important things in life--not their excessive sweating.
How does the IHHS know how to best achieve this goal? Mostly, we take our cues from you. From you we learn what is most needed in hyperhidrosis care, what is working, and what needs improvement; we learn where to put more emphasis and where to improve outreach. We are continually adjusting to best serve the needs of our members.
Lisa Pieretti, Executive Director of the IHHS, sits at the helm of our communication network. She recently commented on her daily interaction with people who contact the IHHS.
"The emails arrive hourly with questions, compliments, and suggestions. Almost every letter starts with ‘I'm so glad I finally found you!'— the most frequently used word is surely ‘embarrassed'. Everyone, in some way, conveys how excessive sweating steals the joy and self expression from life."
"These voices keep me working—and awake at night—searching for ways to offer comfort, direction, and empowerment—not to mention medical care that is easily accessible and effective. We're still not there. As good as the treatments are—and they are much better than they were 5 years ago—we still have a lot of work to do."
"On a professional level," she continues "these letters keep my motivation high. Sometimes they can give me that much-needed pat on the back, letting me know that the hard work is reaching people and changing things for the better."
Because the IHHS is a highly web-based organization, communication between our organization and its members has a real-time immediacy. Since our inception in 2003, the Internet has allowed us to create and sustain a diverse international community and to continually reach out to more people in new ways. This ability to reach an ever- growing community didn't exist 20 years ago: The IHHS is absolutely a product of the new millennium.
To best utilize the benefits of the IHHS's "virtual" world, we continually look for ways to shrink the spaces between our members and engage in some real back and forth. To better enhance this capacity, we are now in the process of creating a hyperhidrosis survey that will help us to better respond to the needs of the hyperhidrosis community. And your input is invited.
This survey will help us begin to assess the state of healthcare for people with excessive sweating. The survey will ask about participants' experience with hyperhidrosis, including doctor visits, treatments undergone, and what the future of hyperhidrosis care should look like.
Why not take a moment and send us a question? What do you wish people knew about living with hyperhidrosis? What would you like to know about other people who live with hyperhidrosis?
We will use the survey's feedback to help shape and guide future work at the IHHS and help researchers involved with hyperhidrosis care develop better products to treat it.
Pharmaceutical and biotech researchers are absolutely invited to participate. What do you want to know about the 3+ percent of the population who lives with hyperhidrosis?
Marketing professionals are likewise encouraged to ask questions. What are consumers with hyperhidrosis looking for in a product? We can also help you improve your product or the access of your brand. This is a great opportunity to get incredible feedback directly from the marketplace.
This can be one of those empowering moments, we hope, for all members of the hyperhidrosis community. It is a forum to speak (virtually) directly to people who share the hardships of excessive sweating as well as to those who are devoted to helping and treating them. It's important for us to hear what you have to say...we are listening!
|
|
|
|
|
|
 |
|
|
 |
|
|
|
|
|
 |
|
|
Find a doctor who treats excessive sweating. |
|
|
 |
|
|
|
|
|
 |
|
|
|
|
|
 |
|
 |
|
|
|
|
|
|
|
|
